Cover image for Palliative care  transforming the care of serious illness
Palliative care transforming the care of serious illness
First edition.
Publication Information:
San Francisco, California : Jossey-Bass, 2010.



Physical Description:
1 online resource (467 pages).
Robert Wood Johnson Foundation Series on Health Policy
Local Note:
Electronic reproduction. Ann Arbor, MI : ProQuest, 2015. Available via World Wide Web. Access may be limited to ProQuest affiliated libraries.
Subject Term:


Material Type
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Palliative Care is the first book to provide a comprehensive understanding of the new field that is transforming the way Americans deal with serious illness.

Diane E. Meier, M.D., one of the field's leaders and a recipient of a MacArthur Foundation "genius award" in 2009, opens the volume with a sweeping overview of the field. In her essay, Dr. Meier examines the roots of palliative care, explores the key legal and ethical issues, discusses the development of palliative care, and presents ideas on policies that can improve access to palliative care.

Dr. Meier's essay is followed by reprints of twenty-five of the most important articles in the field. They range from classic pieces by some of the field's pioneers, such as Eric Cassel, Balfour Mount, and Elizabeth Kübler-Ross, to influential newer articles on topics such as caregiving and cost savings of palliative care. The reprints cover a wide range of topics including:

Why the care of the seriously ill is so important

Efforts to cope with advanced illness

Legal and ethical issues

Pain management

Cross-cultural issues

Philosophical perspective

The demand for palliative care has been nothing short of stunning--largely because of palliative care's positive impact on both the quality and the cost of care provided to seriously ill individuals. By providing a wide-ranging perspective on this growing field, this book will serve as a guide for developing meaningful approaches that will lead to better health care for all Americans.

Table of Contents

ForewordRisa Lavizzo-Mourey
IntroductionDiane E. Meier and Stephen L. Isaacs and Robert G. Hughes
Part I Review of the Palliative Care Field: Original Article
1 The Development, Status, and Future of Palliative CareDiane E. Meier
Reprints of Key Articles and Book Chapters
Part II Care of the Seriously Ill: Why Is It an Important Issue? Approaching Death: Improving Care at the End of LifeMarilyn J. Field and Christine K. Cassel
3 Decisions Near the End of Life
Council on Ethical and Judicial Affairs, American Medical Association
Part III Efforts to Cope with Death and Provide Care for the Dying
4 HopeElisabeth Kübler-Ross
5 The Nature of Suffering and the Goals of MedicineEric J. Cassell
6 The Nature of Suffering and the Goals of NursingBetty R. Ferrell and Nessa Coyle
7 Death: "The Distinguished Thing"Daniel Callahan
8 The Philosophy of Terminal CareCicely Saunders
9 Access to Hospice Care: Expanding Boundaries, Overcoming BarriersBruce Jennings and True Ryndes and Carol D'Onofrio and Mary Ann Baily
Part IV Social, Legal, and Ethical Issues
10 The Health Care Proxy and the Living WillGeorge J. Annas
11 Terri Schiavo: A Tragedy CompoundedTimothy E. Quill
Part V Research into End-of-Life Care
12 A Controlled Trial to Improve Care for Seriously Ill Hospitalized Patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT)
SUPPORT Principal Investigators
13 Factors Considered Important at the End of Life by Patients, Family, Physicians, and Other Care ProvidersKaren E. Steinhauser and Nicholas A. Christakis and Elizabeth C. Clipp and Maya McNeilly and Lauren McIntyre and James A Tulsky
14 Use of Hospitals, Physician Visits, and Hospice Care During Last Six Months of Life Among Cohorts Loyal to Highly Respected Hospitals in the United StatesJohn E. Wennberg and Elliott S. Fisher and Thérèse A. Stukel and Jonathan S. Skinner|cSandra M. Sharp and Kristen K. Bronner
15 Family Perspectives on End-of-Life Care at the Last Place of CareJoan M. Teno and Brian R. Clarridge and Virginia Casey and Lisa C. Welch and Terrie Wetle and Renee Shield and Vincent Mor
Part VI Palliative Care
16 The Treatment of Cancer PainKathleen M. Foley
17 Responding to Intractable Terminal Suffering: The Role of Terminal Sedation and Voluntary Refusal of Food and FluidsTimothy E. Quill and Ira R. Byock
18 Response to Quill and Byock, "Responding to Intractable Suffering"Daniel P. Sulmasy and Wayne A. Ury and Judith C. Ahronheim and Mark Siegler and Leon Kass and John Lantos and Robert A. Burt and Kathleen Foley and Richard Payne and Carlos Gomez and Thomas J. Krizek and Edmund D. Pellegrino and Russell K. Portenoy
19 Challenges in Palliative Care: Four Clinical Areas That Confront and Challenge Hospice PractitionersBalfour M. Mount
20 Outcomes from a National Multispecialty Palliative Care Curriculum Development ProjectDavid E. Weissman and Bruce Ambuel and Charles F. von Gunten and Susan Block and Eric Warm and James Hallenbeck and Robert Milch and Karen Brasel and Patricia B. Mullan
21 Negotiating Cross-Cultural Issues at the End of Life: "You Got to Go Where He Lives"Marjorie Kagawa-Singer and Leslie J. Blackhall
22 Variability in Access to Hospital Palliative Care in the United StatesBenjamin Goldsmith and Jessica Dietrich and Qingling Du and R. Sean Morrison
23 Do Palliative Care Consultations Improve Patient OutcomesDavid Casarett and Amy Pickard and F. Amos Bailey and Christine Ritchie and Christian Furman and Ken Rosenfeld and Scott Shreve and Zhen Chen and Judy A. Shea
24 Cost Savings Associated with U.S. Hospital Palliative Care Consultation ProgramsR. Sean Morrison and Joan D. Penrod and J. Brian Cassel and Melissa Caust-Ellenbogen and Ann Litke and Lynn Spragens and Diane E. Meier
25 The Loneliness of the Long-Term Care GiverCarol Levine
26 Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their CaregiversEzekiel J. Emanuel and Diane L. Fairclough and Julia Slutsman and Linda L. Emanuel
Part VII The Ends of Medicine and Society
27 Finding Our Way: Perspectives on Care at the Close of LifeStephen J. McPhee and Michael W. Rabow and Steven Z. Pantilat and Amy J. Markowitz and Margaret A. Winker
The Editors
Name Index
Subject Index